Jory Pierre-Louis

Jory Pierre-Louis

My name is Jory Pierre-Louis and I have Treacher Collins Syndrome. I wanted to bring awareness to this birth defect and hopefully help...

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Jory Pierre-Louis

Miami, FL

member since:

My name is Jory Pierre-Louis and I have Treacher Collins Syndrome. I wanted to bring awareness to this birth defect and hopefully help someone that is having a hard time accepting who they are. It took me a long time to accept who I am and writing this book allowed me to express everything I was hiding and afraid to admit about myself. Writing this book was the most fulfilling thing I ever did in my life and I am so proud to share it with you. Treacher Collins Syndrome is genetic; there is a 50% chance I can pass it on to my child, and if they do not get it they can still pass it to my grandchild, or my great-grandchildren. If I never get a chance to meet you just know that I love you. Part of the motivation of writing this book was for you. Anyone that was born with a birth defect or any type of disability just know that you are not alone. Take advantage of who you are.